The patient's perception (Patient Related Outcome) is of utmost importance in clinical trials.
ADCT
The Atopic Dermatitis Control Tool (ADCT) is a validated Patient Related Outcome Measure (PROM) that assesses disease control, allowing a more accurate assessment of AD severity over time. The ADCT has been recommended by the HOME Initiative as a core instrument for measuring long-term control.
It is a short questionnaire (6 questions) and easy to interpret by both the caregiver and the patient.
PO-SCORAD
PO-SCORAD is a tool created by the Eczema Foundation that uses a clinical score developed and validated by a group of European experts on atopic dermatitis: ETFAD (European Task Force on Atopic Dermatitis).
A new application is currently being developed to provide quick and easy access to the tools : Eczema Care +
RECAP (Recap of atopic eczema)
RECAP is a seven-item questionnaire designed to collect feelings about eczema control, regardless of age and severity of eczema.
There are two versions: a self-reported version for adults and older children and a caregiver-reported version for younger children.
RECAP is one of the key outcome measures recommended by the Harmonizing Outcome Measures for Eczema (HOME) initiative.
To download the questionnaire, visit the University of Nottingham's Centre of Evidence Based Dermatology website (link below)
Quality of life questionnaires
As atopic dermatitis has a major impact on the quality of life of patients, it is important to be able to assess it. Measuring the impact on quality of life also reflects the severity of the disease.
The DLQI (Dermatology Life Quality Index) questionnaire is specific to skin disease and adaptable to all ages of life.
It is available as a smartphone application (developed by Cardiff University).
This questionnaire is suitable for adults and adolescents over 16 years of age.
DLQI (French version)
This questionnaire is suitable for children and adolescents aged 5 to 16.
CDLQI (French version)
This questionnaire in the form of a cartoon is intended for children aged 4 to 12.
CDLQI-Cartoon (French version)
This questionnaire is intended for adults (over 16 years), family members or partners of patients (of any age) with skin disease.
The questionnaire can be downloaded from the Cardiff University.